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Public Health Genomics European Network (PHGEN)

 Public Health Genomics European Network (PHGEN)
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Postal Address: Postal Address: Institute for Public Health Genomics Department of Genetics and Cell Biology P.O. Box 616 6200 MD, Maastricht The Netherlands
Phone number: +31-43-3882206
Organisation Type: Other
Organisation summary: PHGEN II fulfils priority action of WP 2008 by producing the first edition of “European Best Practice Guidelines for Quality Assurance, Provision and Use of Genome-based Information and Technologies”. It builds on the experiences of PHGEN I (Public Health Genomics European Network) which was a networking exercise to develop a common understanding of Public Health Genomics between all stakeholders in Europe and which identified the need for European coherent guidelines in that field. Since genetic determinants are hardly recognized as playing a key role in the understanding of diseases and target-oriented prevention, ongoing exchange of knowledge and best practice in this rapid growing field is needed. The project uses an interdisciplinary approach and reviews the available evidence including evidence emerging from relevant European research and health action networks to avoid duplication of EU work and funding and to develop agreed on best practice guidelines. Key experts such as Public Health experts, EU lawyers, Human Geneticists, Ethicists, Systems Biologists, HTA experts and patient groups are involved into PHGEN II. By this, the often seen gap of knowledge transfer between basic science, health services delivery and public health is minimized. PHGEN II follows the methodology of the Public Health Trias to ensure a timely and evidence-based development of the guidelines which tackle both rare and common complex diseases. The process of guidelines development is in line with international standards and includes a public consultation process via internet, a pilot of the guidelines by the use of case studies and an Endorsement panel. The guidelines will acknowledge the diversity and cultural plurality in Europe, are part of the new Health Strategy of the EU and foster the approach of Health in all Policies. It encourages the implementation of the Lisbon Strategy and helps to preserve equity and solidarity in health care and public health in Europe.

Funding types:

Riche Classification

Health issues, determinants and measures: Risk assessment , Dialogue and collaboration , Scientific committees , Prevention , Research , Genetics , Biomedical engineering , Health care resources , Health policy ,